The guide is intended to help address serious concerns raised by friends, family members and carers of dying people as well as health and social care professionals about the current inconsistent provision of information about the dying process.
Alzheimer’s Society comment:
Gavin Terry, Head of Policy and Public Affairs at Alzheimer’s Society said:
‘Many people do not associate dementia as a terminal illness when in fact it is the leading cause of death amongst women in the UK. For too long, death and dying has been a taboo and there is a lack of support for carers and families when it comes to preparing for these final days and hours. This guidance is invaluable in demystifying death and providing information and support.
‘Because of the nature of dementia where, in the later stages, people with the condition often lack capacity to make informed decisions it is important that discussions about end of life are had early so that families are aware of their wishes.’